Gracie visited the orthopedic specialist today for the first of apparently many times. The "unofficial" diagnosis is Arthogryposis, which is a genetic disorder which causes joint contractures. She has limited movement of fingers, wrists, legs and feet. Her leg bones are not in the hip sockets- apparently she was born this way, the doc. doesn't know if he will be able to get them back in as the bone and socket have been growing separately for the last 18 months. She is going to be the lucky recipient of two nice casts in about a week, and they will recast every couple of weeks in order to get her feet pointed in kind of the right direction, then comes the surgeries. Probably in about 8 weeks they will do reconstructive surgeries on her feet, and possibly hips as well. Pray for her as she faces all this stuff she needs in order to be able to walk.
Our princess Daphna was just treated for a tapeworm......oh the glamor of it all!
That may just explain the appetites!
Looks like we are delivering supplies to Ohio this Saturday- thank you for all your contributions to HIS Home. We still have room in the container if you want to add to the shipment.
Blessings!
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2 comments:
I will definitely keep Grace in my prayers...she is one special little girl. Poor Daphne...what a yucky thing to go through...I thought only cats got tapeworm! :)
Safe travels to Ohio...if I was closer I would help you fill that trailer up!
~Amy in WI
Praying for Grace and Daphne, and you all.
I hope to your new sweeties someday.
Are you planning to be at the VB summer party on/around June 19?
That would be nice. I am working on flight details.
Aunt P. in Edmonton
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